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Asked by ProfessorKoala2700
An 18-year-old male with Duchenne’s muscular dystrophy (DMD) who requires continuous positive airway pressure (CPAP) at night, has a history of cardiomyopathy, and who is bed-bound due to leg and trunk weakness is showing signs of depression. In the past 3 months he has been hospitalized for recurrent respiratory infections. His parents call the primary care provider concerned about signs of depression related to progression of his disease, and recent discussion with the Neuromuscular/Palliative Care medical team regarding placement on a ventilator for support. What are some of the general considerations when communicating with families of children with special healthcare needs who are receiving palliative care services? Provide 1-2 examples specific to the case presented. What role do primary care pediatricians have in the palliative care of their patients? Provide 1-2 examples specific to the case presented.
SCIENCE
HEALTH SCIENCE
NURSING

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