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Recent advancements in genomic healthcare have opened doors to unprecedented predictive capabilities for genetic conditions. However, with these advancements comes an ethical dilemma that challenges the very foundation of patient privacy and autonomy. The central at the core of this debate is: Should individuals have access to predictive genetic testing when the results could potentially impact not just their health decisions, but also their privacy, insurability, and social standing? Regarding the principle of justice, the central terms are accessibility, equality, and representativity in the usage of genetics (Vila et al., 2023). The ethical dilemma arises when an individual undergoes predictive genetic testing and discovers they carry a gene associated with a high risk of developing a certain condition, such as Huntington’s disease or breast cancer. This knowledge could lead to proactive health monitoring and potentially life-saving interventions. However, it also poses significant risks to the individual’s right to privacy, accessibility, and equality. If such information were to be disclosed to insurance companies, employers, or even family members without consent, it could lead to discrimination, stigmatization, and psychological distress. However, Proponents of predictive genetic testing argue that the benefits of such tests, in terms of preparedness and prevention, far outweigh the privacy concerns. They claim that with proper regulations in place, privacy can be safeguarded while still providing life-altering information to those at risk (Green et al., 2021). On the other hand, opponents, however, stress the psychological impact and the potential for genetic determinism, where individuals may be viewed and treated based on their genetic predispositions rather than their actual health status. They also highlight the current inadequacy of laws protecting genetic information and the potential misuse of data by third parties (Joly et al., 2020).
SCIENCE
HEALTH SCIENCE
NURSING

 
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