SOLVED165

Clinical research is void of ethnic and racial diversity including genomic medicine which focuses on genetic disposition related to disease and health outcomes (Hendricks-Sturrup et al., 2020). Utilization of African-American nurses would be useful to close the gap of racial inequity in genomic medicine (Hendricks-Sturrup et al., 2020). The ethical principle violated by this dilemma is justice. African Americans are reluctant to participate in clinical genomic research of any kind due to historical miscarriages of justice such as cited in the Henrietta Lack case. This is true based on these three reasons. First of all, 78% of data used in genome-wide associational studies (GWAS) originates from individuals of European descent, but this specific group makes up only 16% of the global population resulting in European bias in the risk prediction of genetic diseases and other genomic applications in medicine in populations of non-European descent (Hendricks-Sturrup et al., 2020). Secondly, African Americans are less likely to submit bio-specimens for research. The National Institute of Health (NIH) All of Us Research Program investigators reported that, as of July 2019, underrepresented groups comprise more than 80% of persons from whom biospecimens have been obtained for research, exceeding their program target of 45% (Hendricks-Sturrup et al., 2020). However, there was no mention of (AA) people anywhere in the report. Thirdly, research-guided utilizing biobank resources grants researchers from Western countries in tangible and intangible ways (Yakubu et al., 2020). In research that is conducted primarily for commercial benefits, for example in pharmaceutical research (Yakubu et al., 2020). The actual benefit is more substantial than in knowledge-driven research, which primarily aims to build general scientific knowledge (Yakubu et al., 2020).
SCIENCE
HEALTH SCIENCE
NURSING

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